Cancer is a painful experience in a multitude of ways, but a Mercy Cancer Center program attempts to lessen the pain associated with treatment of the disease.

The STAR (Survivorship Training and Rehabilitation) Program is a nationally recognized cancer effort that focuses on improving the lives of survivors who suffer from the side effects of treatments.

“Fatigue is probably the primary complaint all of our cancer patients have,” said Anne Schroeder, a physical therapist and one of the 25 Mercy employees certified in the STAR Program. “It doesn’t matter where the diagnosis came from. A lot of it is the effect of the chemotherapy and radiation, and the medications they take are pretty toxic to their system. … A lot of patients experience muscle weakness and a lot of balance issues.”

Since 2013, a team of multidisciplinary specialists at Mercy — occupational and physical therapists, as well as nurses — have helped cancer patients overcome treatment-related conditions such as pain, weakness, fatigue, shoulder problems, balance issues, memory and concentration difficulties, swallowing and speech problems and lymphedema. About 10 patients go through the program each month.

“Regardless of their prognosis, the benefit that they’ll come back and tell you about is that they have more energy or ability to do what they need to do,” Schroeder said. “For some of them, that’s getting back to work. For others, it’s just being able to sit up at the kitchen table to eat with their family for a half-hour.

“There’s all levels of function there, but really we’re trying to get their pain down, increase their quality of life,” Schroeder said. “We set those goals with the patient in the first meeting or two.”

Catherine Hughes is an example of what the program can accomplish.

The 46-year-old Sylvania woman was diagnosed with breast cancer, resulting in two surgeries and chemotherapy every three weeks for one year, during which she also had 35 radiation treatments. To complicate matters, she was diagnosed with lymphedema — fluid retention and tissue swelling — in her left arm and left breast due to the removal of her lymph nodes.

“After all the treatment I had been through I felt like my body never got back to normal. I was fatigued and had a hard time exercising,” Hughes said in an email interview with Toledo Free Press. “When the opportunity was given to me to do the STAR Program I was excited to participate in it. The program made a world of difference in my life. After completing the STAR Program, I truly feel like my body is back to normal. I am able to exercise and I’m not tired anymore. Also, I have seen a difference in my lymphedema; my arm does not swell up anymore and I feel it is under control.

“This program has been a blessing to me and they have an amazing staff,” Hughes said. “From the time I was diagnosed with cancer I had all my doctor appointments, lab tests, surgeries and any other test I needed through the Mercy system. I always felt I was given the best treatment in every department I had contact with. The people who work for the Mercy system are wonderful and helpful. I thank God every day for the medical staff that gave me great care.”

Patients’ stays in the STAR Program tend to be one to two times per week for two to three months, Schroeder said. Inclusion into the program requires a physician referral.

So far, Schroeder has seen breast and brain cancer victims the most frequently.

While brain cancer is not a common cancer, Schroeder said these patients are more likely to experience problems with balance.

“Our goal is to see them the minute they start to experience a deficit, if not before,” she said. “We try to get people in quicker so they don’t have to live with those deficits. I think they just accept it sometimes as ‘Well, I’m happy to be alive and I’m stuck with this.’ But they can improve.”

A common problem faced by breast cancer patients treated by Schroeder is tightness in the shoulders, due to scarring, radiation and surgical issues.

“A lot of them can’t lift their arm up to get their shirt on,” she said. “Any task reaching overhead they can’t do. And they have weakness with that too, so they might not be able to lift their coffee cup.”

The STAR Program can help them regain that range of motion and muscle strength.

Regardless of the type of cancer, many cancer patients experience similar symptoms due to chemotherapy and radiation, Schroeder said.

“As a physical therapist, I don’t treat a kidney or a liver, but the chemotherapy effects [they experience] are almost the same,” she said.

The STAR Program was founded by Dr. Julie Silver an assistant professor in Harvard Medical School’s Department of Physical Medicine and Rehabilitation.

For more information or to refer a patient, call (888) 987-6372 or visit mercyweb.org

In a quaint Sylvania café, Bethany Gurzynski scrolls through an online catalogue of customized apparel she’s created with nothing more than her artistic talent and a little bit of free time.

Hoodies, T-shirts, V-necks — all bearing unique designs celebrating everything from Toledo’s historic Jeep plant to the University of Michigan’s hiring of Jim Harbaugh.

However, there is one design — albeit a rather simple one — that stands out among the rest.

A black T-shirt featuring a pink ribbon logo and bold lettering that reads: “I Can. I Will. End Of Story.”

“This is for Tiffany and Melinda,” she says, smiling.

Gurzynski, an art teacher at McCord Junior High School, recently began selling the shirts online to support two Sylvania women currently in the fight of their lives.

Tiffany Townsend and Melinda Restivo both had their lives drastically altered when they received a diagnosis of two very different forms of breast cancer.

To ease the financial burden on these two women, Gurzynski created the inspirational outerwear and jumpstarted a fundraising campaign Feb. 2 on Teespring.com.

Marketing the apparel under the umbrella of her new company, Toledo Threads, she has already sold 462 shirts with 100 percent of the proceeds to be split between Townsend and Restivo.

“There are a lot of things I couldn’t do to help them,” said Gurzynski, who currently teaches Townsend’s and Restivo’s children in her art class. “I couldn’t give them $5,000, but I could do a design — one that would cost me virtually nothing — that raises $5,000.”

Prices for the “I Can. I Will. End Of Story.” line range from $20 for a standard or women’s fit T-shirt to $35 for a hoodie. Gurzynski is also offering long-sleeve shirts, V-necks and a tie-dye version.

“I don’t know where I’ll be in five years,” Gurzynski said. “I don’t know if [cancer] is going to affect me, my mom or my sister. So why wouldn’t I pay it forward?”

Gurzynski said the design for the shirt, as well as the slogan, are well-known symbols of strength and inspiration for those battling tough times in life.

A big part of the campaign’s success is due to the local push it has received. Friends, relatives, strangers and even Gurzynski’s fellow teachers at McCord Junior High have all purchased shirts to support the two mothers.

“Their daughters will see the teachers wearing the shirts and they’ll feel that support at school,” Gurzynski said.

Townsend, an educator at Perrysburg Junior High School, said her students and even her own co-workers have also purchased the shirts.

“I’m overwhelmed,” Townsend said. “I think people just want to help in any way they can. This is an easy way they can show love and support, and it’s a cool shirt on top of it.”

Both Townsend and Restivo said the money they receive from the campaign will help their families survive this tough time by offsetting the cost of living expenses and medical bills.

“I wasn’t prepared for this in any way,” Restivo said. “The financial burden it puts on a family is hard. One day you think you’re just chugging along and then, ‘Wham!’”

Having only met Gurzynski a few times prior to her start of this fundraising effort, Restivo said she was surprised at the effort.

“She was this guardian angel that came to me,” Restivo added. “She’ll never know how grateful I am and how much this will help me and my family. Words will never be able to express how grateful I am.”

Melinda’s fight

Restivo lost her father to lung cancer in April and was still in the process of grieving when she discovered a lump on her right breast in October.

“At that time, I let a lot of things for my own health go by the wayside,” Restivo said. “I knew I needed a mammogram done. A week after I scheduled my mammogram, my husband hugged me and, when he hugged me, something popped in my right breast.”

Following a series of doctor and hospital visits, Restivo visited the ProMedica Toledo Hospital Breast Care  Center on Nov. 3 and received the proper testing to diagnose the mass on her breast.

She was not prepared when she got the call two days later.

“It’s a day you never forget,” Restivo said. “I had lost my dad and six months later, here I am being diagnosed with cancer. You never know how it feels until it’s told to you. It affected me when my dad had it, but it changed me when I was told I have it.”

On Nov. 5, she was diagnosed with triple negative invasive ductal carcinoma — a rare subset of cancer that lacks the presence of estrogen and progesterone receptors, and generally responds well to chemotherapy.

Her tumor, relatively large by the time it was discovered, had evaded early detection by hiding behind dense breast tissue.

“It was already further along than I wanted it to be,” Restivo said. “I was shocked. I was shocked at the stage of it. I was shocked by the diagnosis of it.”

Now surrounded by what she calls a “wonderful group” of doctors, oncologists and radiologists, Restivo has been undergoing an aggressive chemotherapy regimen since November.

Restivo said she’ll finish with chemotherapy April 17 and prepare for surgery not long after.

“It’s been a journey. It still will be for another year or so,” Restivo said. “Every woman’s path is different. After surgery I’ll go through radiation; and, after that, there could be talks of reconstruction. My goal is to have a double mastectomy by the time it’s all said and done.”

Tiffany’s story

Townsend’s journey began more than a month ago when her ob-gyn discovered a lump on one of her breasts during an annual checkup.

Her doctor, whom she has gone to since she was 18 years old, tearfully delivered the news in late January.

The diagnosis: ER/PR positive breast cancer — a hormone-receptor form of the disease that grows in response to estrogen and progesterone.

“It’s been a total whirlwind,” Townsend said. “It’s been crazy. There really isn’t a better word to describe it.”

Townsend underwent surgery Feb. 19 and reported Feb. 25 that her lymph nodes are negative for cancer and the margins around her small tumor were all clear.

Within the next few weeks, Townsend said, she plans to begin one year of chemotherapy, followed by a daily regimen of hormone therapy pills for the next five to 10 years.

“It’s great to have some good news coming out of such a bad diagnosis,” she said.

Breast cancer is the most common form of cancer among women worldwide and the second most common cancer overall. In 2015, it is estimated there will be 231,840 new cases of invasive breast cancer among women in the United States — causing 40,290 deaths, according to Susan G. Komen.

To purchase the “I Can. I Will. End of Story.” shirt, visit teespring.com/stores/toledo-threads. For more information, visit the Toledo Threads Facebook page at Facebook.com/ToledoThreads or email Gurzynski at [email protected]. O

Thanks to improved treatments and highly publicized fundraising events, cancer isn’t the taboo subject it once was.

However, there are still some types of the disease people don’t want to even think about.

Hello, colorectal cancer.

It seems pretty much no one wants to talk about colonoscopies, although the screening method could prevent more than 90 percent of colorectal cancers if everyone had one at the age of 50, according to the American Cancer Society  (ACS). Those with a family member who developed colorectal cancer before the age of 60 are advised to get their first colonoscopy at the age of 40.

Two women from the Hickman Cancer Center at ProMedica Flower Hospital hope to take away some of that stigma surrounding colorectal cancer. March is National Colorectal Cancer Awareness Month.

“We can prevent more cancer if people go in and have their colonoscopies,” said Kelly Morse, a licensed genetic counselor with ProMedica Cancer Institute. As part of her job, Morse talks with patients and their family members about preventing or catching cancer early, particularly with those who have a family history of the disease.

“Even with colonoscopies, there’s a stigma. People say, ‘Oh, I’m not doing that,’” Morse said. “It’s always ‘Oh, I’ve heard they’re terrible. Oh, I don’t ever want to have that done. Nobody’s doing that to me.’ Or the biggest one is, ‘I’m afraid of what they’ll find.’ Well, delaying it further is just going to make it worse. Trying to bring people to that realization is just really, really hard.”

Robin Sulier-Charney,  an outreach coordinator with ProMedica Cancer Institute, goes out in the community to help raise awareness of cancer prevention and early detection. Any one of the 3,500 people who walked through a 20-foot, inflatable colon dubbed “Super Colon” at a Mud Hens game last year has Sulier-Charney to thank for that experience.

The blow-up colon will make another appearance March 20 at the Toledo Walleye game at the Huntington Center.

For Sulier-Charney, who wears a turquoise “I heart booty!” bracelet, it’s all about community awareness.

“It is almost a completely preventable cancer,” she said. “I would love to see people go in to their doctors and say, ‘Can you help me with my family history and what are my options for screening?’ Just to start that conversation, we could reduce the incidence of colorectal cancer by a pretty substantial rate.”

More than 50,000 Americans were expected to die from colorectal cancer in 2014, according to ACS.

The Lucas County Colorectal Cancer Coalition (LCCCC), a small group of community activists dedicated to colorectal prevention, states that Lucas County has one of the highest late-stage diagnosis rates in Ohio, with the cancer being the second-leading cause of cancer deaths in the county.

Although rarely discussed, people who have died from colorectal cancer include Audrey Hepburn, Charles Schulz, Jack Lemmon and Vince Lombardi.

As of five years ago, only 59 percent of Americans above the age of 50 had received any sort of colorectal cancer testing, according to the ACS.

“An early diagnosis is the closest thing we have to a cure,” Sulier-Charney said.

According to the ACS, colorectal cancers start as a polyp, an abnormal, fleshy growth in the colon. Polyps are not necessarily cancerous, although those identified during a colonoscopy can be removed before they become cancerous. Symptoms of colorectal cancer do not appear until the polyp is large enough to cause bleeding or colon blockage. Early-stage colon cancer shows no symptoms.

Hence, the need for screenings.

“The vast majority of colorectal cancers are sporadic and randomly occurring,” Morse said. “The way we’re going to identify those in people is through routine screenings.”

Although guidelines for the general population maintain getting a colonoscopy by the age of 50 (and every 10 years afterward), those with a family history may need to take a more aggressive approach.

One in 35 colon cancer cases is due to Lynch syndrome, a genetic disorder that predisposes a person to develop certain types of cancer. Someone with Lynch syndrome has a nearly 80 percent chance of developing colon cancer, Morse said.

According to the LCCCC, a colonoscopy involves the doctor using a flexible, hollow tube about the width of a finger to inspect the entire colon. The exam takes about 15-30 minutes, while the patient is sedated. About 12 hours of fasting is required, as well as the consumption of a liquid that will help clear out the colon.

Identifying cancer in one’s body can be a scary proposition, but it’s one that can save their life, said Sulier-Charney, who has overcome a personal battle with cancer. She has had two colonoscopies herself.

“When people think of cancer, they’re frightened and the first thing they think of is death,” she said. “They think of worst-case scenarios. But it is far from that. We have so many things that we can help people do before it even gets to that point.”

There are ways for most people to reduce their risk of developing colorectal cancer, such as eating a higher-fiber diet, increasing physical activity, limiting alcohol consumption and reducing the amount of red and/or processed meat consumed.

“The most important thing that I want to get through is save yourself a lot of heartbreak, time and money: know what your risks are, know what you need to do, talk to your doctor and be an advocate for yourself,” Sulier-Charney said.

For more information, visit toledocolonhealth.org and cancer.org