Among the battles faced by
families with a loved one with Alzheimer’s disease or dementia is deciding if
and when to take them out of their own home to a facility.
In March, Alzheimer’s expert
Susan Scanland visited Senior Star at West Park Place Toledo to give a seminar
titled, “Seniors: When to Make The Move.” Scanland has given more than 500 such
seminars on Alzheimer’s and dementia in more than 40 states in her 30-plus year
career. She currently consults at a long-term care center
in Scranton, Pennsylvania, where she evaluates residents and can make dementia
recommendations for the medical and nursing staff.
There are a number of reasons
it’s hard for both the patient and family to “make the move” from the home to a
care center, Scanland said.
“Number one I think is the
hesitancy to leave one’s homestead, where one’s been for many years,” she
said. “Number two is often the negative
stereotype of community senior living. … Many families fear they are
institution-like.”
Scanland, who has spoken at
West Park Place several times, said that is often the furthest thing from the
truth.
“It’s not the nursing home,
but people often have that negative stereotype,” she said, explaining many
places offer the ability for a couple to stay under the same roof but still
provide the needed care for the partner with Alzheimer’s.
“Very often there are so many
emotions when an older person has to put their loved one in a nursing home
because they can’t take care of them,” she said. “But they can live together,
and contract to bring private-duty nurses in. So a couple can be more
independent longer and live together longer than if they were at home.”
The third reason it’s hard to
move a loved one from their home into a care center could actually be higher on
the list for many families, Scanland admitted.
“Guilt is a huge emotion when
it comes to placement,” she said. “So many families have told me that this is
the hardest decision they ever had to make in their lives. The problem is,
often they’re making it without adequate information. … Often too, there are
disagreements between adult children about what to do about mom and dad because
there’s a lack of information.”
In her Toledo talk, Scanland
said her purpose was simple — to educate about existing options.
“There are reasons why home
sweet home may not be as safe or as wise a choice as they think it is,” she
said.
Scanland identifies seven
areas to consider when determining if it’s indeed time to “make the move” or
“kiss the guilt good-bye.”
• Pedestrian and driving risks
— Even persons with mild dementia are more likely to makae decisions that can
result in them getting hit by a vehicle, Scanland said.
“Having fender benders,
getting lost while driving are huge red flags,” she said. Oftentimes, dementia
patients may depend on another passenger’s “copiloting” to get them from one
place to another while driving, Scanland said.
• Nutrition and hydration —
Scanland did house calls on dementia patients for years and would often find
freezers full of ice cream and other junk food, with no vegetables. Older
people often lose their sense of thirst and don’t get enough to drink, she
said.
• Medication mixups — People
over 65 are four times more likely to have reactions to medications than
younger people, Scanland said. Dementia patients are more likely to confuse
medications — blood pressure and diabetes drug mixups can be particularly
dangerous, she said.
• Falls — “Often older people
think it’s OK if they fall,” Scanland said. “It’s not OK that they fall.” Falls
contribute to 16,000 deaths in the elderly each year, she said. One out of
three people over the age of 65 are at risk for falling, while half are at risk
if over 80 years old, she said. She has seen many cases where dementia patients
were lying on the floor for one to two days after falling.
• Elopement (walking/driving
away from home) — 75 percent of dementia patients wander from their home at
least once, Scanland said.
• Isolation/loneliness —
People who get depressed after the age of 65 are at a higher risk of developing
Alzheimer’s, Scanland said.
“Just because you have
dementia, sitting in front of the TV all day with no social interaction and no
people, it’s not good for the brain,” she said.
• Financial exploitation —
Scanland called it a silent epidemic, pointing out studies suggest four or five
unreported cases of elderly scams to go along each one that is reported.
Kirsten Pickle, executive
director of West Park Place, said the program on the seven areas to consider
was well received by both seniors and their families.
“I think those things are
important because nobody wants to leave their home, but it’s also hard to be
objective on reasons why you should,” Pickle said. She said the average age of
a West Park Place resident is 86. She pointed out statistics suggesting 80
percent of people over the age of 85 have some form of dementia, even if just
mild cases.
“The most important thing
that people need to understand is to move them earlier,” Pickle said. “The
earlier the move, the easier it is on the senior and the more successful they
will be in their new surroundings. … If they move here earlier, they’re usually
able to stay here a lot later because they’re settled in so well. If you wait
too long, your loved one usually ends up in a nursing home.”
Scanland said the purpose of
her visit to Toledo was to replace confusion with information.
“When you look at the facts
and gather information, it does take a lot of the guilt out of the equation
because then the whole shift can be an incredibly positive experience,” she
said.
For more information, visit
dementiaconnection.com or call West Park Place at (419) 972-2280.